Poems.

Live. Breathe. Be
1/27/10

The chance to live.
The ability to breathe.
Free to fulfill dreams.

My wish for you,
And all I love.

To be, to grow, without a thought.

No worries or troubles in your mind.
Nothing ever need concern you.


The Angel Who is Jessica.
1/27/10

Spread your wings and fly.
Never say goodbye.
A simple kiss goodnight,
To start your peaceful flight.
Your eyes will forever shine,
As tears well in mine.
Your mission here is done,
Calm and comfort have come.

Our Angel on Earth has gone home.
Her true impact now shown.
Her halo takes its light as she forever rests.
Breathe Easy Jess.

Oh Jess

Oh Jess. I miss you so much. I haven't been able to bring myself to blog until now. You were one of the strongest fighters I ever knew. You were such an amazing inspiration. And you always will be. Your sparkling eyes and brilliant smile, even during the hardest of times will always be remembered. I'm still struggling to accept that you're gone. You were not meant to die angel. You were meant to show people with CF that willpower can over come. You were supposed to change the way people thought about life with CF. Its not fair that after all that waiting you never really got to experience your new lungs. You were wonderful Jess. All that work you did will not go unnoticed. No one knew how to stir the media into a frenzy quite like you! (with Sarah & Emily) Many people have said that your story inspired and touched people across the country, but clearly Jess, you've reached farther than that. You made such an impact on me, over here in the USA. And I'm not the only one. You truly were a celebrity in your own way Jess.

We will never stop fighting for you Jess. You may not have been able to finish what you started, but we will.

"Hold on, to what we all remembered fighting for, theres some strength left in us yet!

Hold on, to what we all remembered dying for, theres some hope left in it yet!"

-Flyleaf

Rest In Peace, and Breathe Easy.

Jessica Wales.

The girl, The warrior, The legacy

3/19/1989-1/12/2010

JOY JOY JOY!

Well first of all Merry Christmas & Happy New Year to everyone.

Now. Time for business.

So I started my job at the hospital.
Its great. Good people, good food (surprisingly), good pay & what can I say, there may be somethings I don't like. But over all...I love my new job!!

Now I want to send a big CONGRATULATIONS!!!! To Jessica Wales (click to see her updates) Who FINALLY got her shiny new lungs on Monday! I'm so very proud of her. I'd also like to mention how thankful I am to her donor and donor's family.

I've also been doing lots of work on the CF front. (as always) Fan Page, Group & of course Merchandise! Also I've registered for the 2010 walk-a-thon, so if you'd like do donate, you can do that Here!

My lung function is the highest its been in over 2 years, I'd like to thank my new job for that (aka, all the exercise I get now) and I've also gained weight! YAY. I'd like to thank my new job for that too, because I eat more since I'm on my feet and moving more.

Okay, Thats enough for now!

Yay Nay

Yay! Last night I saw The Trans-Siberian Orchestra! They were more that amazing! If you dont know who they are you should google or youtube them! I've fallen completely in love! I took boat loads of pictures & videos. Only half of the pix have been uploaded to my facebook so far, the rest will come soon, as well as the vids. The vids cant be uploaded till I get my computer back!

...Which brings me to...

Nay! Best Buy has taken my computer hostage again! to 'fix it' but everytime they do that they end up making it worse! I'm so sick of it! I want my computer back! Monday will be 2 weeks since they took it! This piece of junk computer is so horribly slow! BAHHH! Someone get me my computer back!

Right, have some TSO pictures!

Miley Cyrus's CF Tattoo

Everyone knows I'm not the girl's biggest fan, but my thoughts on this are as followed:
'Gee, maybe shes not such a horrible person after all'
'The girl's done something right'

Now, What I would like to see happen is this:
Its great that she went and got a tattoo, but wouldnt it mean more to her friend/fan if she raised some money for CF, or spoke out about it.

So now, the new goal is to form a group/fan page on facebook, then contact miley and see how many members/fans it would take for her to do somthing for CF.

If she did a charity concert, that would be thousands of dollars raised.
If she attended a CF walk-a-thon, that would be thousands on thousands more people who showed up at that walk.

Miley has a chance to do something unbelievably great here. I just hope she knows that. And that she is willing to give it her all.

My CF walk team: Bush's Team Breathe
My CF awareness page: Cystic Fibrosis!, get off your ass and do something about it!

Also, The tattoo & article

Soap Pump Adventure

first let me say this, HAHAHAHAHAHAHAHA!!!, okay, now that I got that out of my system I shall elaborate.

So as most of my friends know, My family is in the process of redoing our house, starting with the kitchen. So today at about 1:30pm my dad decided to install the new soap pump, which should, in theory, take all of maybe 10mins. welllllllll. It took over 3hrs. Why? wellll for a lot of reasons, 1. under our sink is a rather big area, converted into a smaller area by 3 walls & a floorboard. behind each wall is another 2ft arear on the left & right and about 3ft behind it. And as we came to find out today, about 3in under the floorboard. (pic 1) so yeah, My dad was laying on his back under the sink trying to attach the soap bottle to the prongs at the bottom of the funnel thing that connects the bottle to the pump. OH! did I mention our sink is so deep that theres hardly any room to see attachment site! (pic 2). Right. So, Also, the pump attaches on the outside of the right wall, so theres only a small hole in the wall to put your arms through while trying to attach the bottle. So, My dad was only using one arm to try to attach this bottle and all of a sudden...CLUNK! it fell. not to the left or the right. but behind the back wall. SO!!! I wont go into detail about trying to get the the thing out. although eventually the bottle ended up under the floorboard.(pic 3) 3hrs, tape covered tongs, 2 snow dusters, a mirror, a high powered flashlight, pliers, a camera, and the removal of the garbage disposal unit later........We finished it!!!

Then it didnt work!!! So I was reading the instructions and it said that the tube may be clogged with manufactual residue (whatever that means) So I say "maybe I should flush it?" and my dad says "no, its not clogged I can see all the way down the tube", buuuuuut, I took it and decided to flush it anyway, and BEHOLD! It worked! So. yeah,

The moral of the story is: Never let a dad do a Duck's job!

1.

2.

see, you can see the bottle but not really where it attaches to.

3.

the bottle under the floorboard.

Emotional Rollercoaster. Eventually ending in Joy.

Well today was truly an emotional rollercoaster.
Last night a CF friend got a transplant call. (happy) Turned out to be a false alarm. (sad) it was her 6th false alarm. (very sad) Then I found out Rachy is officially on the transplant list (estatic!) Then I got a text telling me Joanne (mentioned in previous blog) passed away during the night. (heartbroken) Then just a few hours I found out another CFer passed away this morning. (sad)

Finally my best friend Daniella came home from college for thanksgiving, and we went to the mall. she totally splurged! though, she didnt spend all that much, but she left the mall with like 6bags. and all I got was, a new headband, hair clips & earings for my mommy for christmas. but we had lots of fun! and took lots of pictures. It was good to get out of the house. I needed to get out and keep my mind occupied. it kept me from spending the day crying in bed. plus, shes my best friend and I love spending time with her. We played with the horrible hair accessories in Clairs. it was funny because we all know Clairs is for 8-12yr olds. haha at one point I physically fell to the floor laughing. The employees must have thought we were insane. then later, some lady working at a stand in the halls of the mall thought I was mentally challenged. because I flailed my arms and went "but I want jelly beans" as Daniella kept walking away from me. LOL. and the lady got in my face and was like "Yeah?!" and I just shuffled off and caught up with Daniella. hehehe. oh oh oh! and at the yankee candle store, we sniffed like every single candle!! then we went back to my house and She raided my medical supplies, and I took pictures of her burried in various medical apparatuses. and she was sniffing my o2 tubing and I go "dude! what are you doing? this isnt the yankee candle store!". then while wearing one of my o2 masks (with the bag thing on it) we're like "even though oxygen is flowing, the bag may not inflate" yes, we rather enjoy our dorkness! and oh! guess what?! my o2 sats hit 99% today!!!!!!!!!!!!!!

So overview:

• Rip Jo
• Congrats Rachy
• Live Life, Then Give Life, Be an Organ Donor
• Best Friends make everything better
• Breath Easy