Saturday, October 26, 2013

Chronic Fever

So yeah, it's been awhile.
I'll make this short.
I've had a low grade fever ranging from 99.9-101.7 for the past 2 month.
I've seen about 5 doctors.
I've had blood draw after blood draw, 9 blood cultures, and a full cardiac work-up.
I have had miscellaneous symptoms but nothing is constant.
Dizziness, palpitations, random weight loss, chills, sweats, nausea, vomiting/diarrhea, fatigue..ect.
I've been put on 3 different antibiotics, all of which were stopped because there was no change, so it's best not to stay on them.
The one thing I do know is that I'm not contagious, and I'm not dying.
So yeah. The end.

Tuesday, May 28, 2013

Sarah needs YOUR help!

"I'm not going for easy, I'm just going for possible" 
- Janet Murnaghan. (Sarah's mother)

This beautiful, brave little girl is Sarah Murnaghan.  Diagnosed with Cystic Fibrosis at one year old, Sarah, now at only 10 years old, is dying.  She is in desperate need of a double lung transplant or she will die within weeks.  Sarah has been listed for over 18 months, as pediatric lungs are very few and far between.  The only thing standing in her way is a UNOS rule (United Network for Organ Sharing).  This rule states that while Sarah can be listed for adult lungs she may only receive them if all other adults/adolescents (over the age of 12) in the area turn them down, regardless of how sick they are.

Sarah's parents and supporters are fighting to have that rule changed.  They are not looking to take lungs from people who are sicker than Sarah, they just want to give Sarah, and other children, a fair shot at survival.  If Sarah were just 2 years older, she would, most likely, have gotten her life saving transplant by now.

Sarah's story has been taken up by many news channels, here is just one of the interviews. 
Another news story

Ways you can help: 
Sign the petition!

SHARE her story! 
Facebook, twitter, word of mouth, they all help. The more people we reach, the better the chance that we get this rule changed!

and of course,
Register to become an Organ Donor, today!

Click here to learn more about Cystic Fibrosis!

Wednesday, March 13, 2013

it's been awhile..

I suppose it has been awhile since I last posted. I'm not really sure what to post, things haven't been good.
Going through a lot of physical and emotional struggles. I've been doing physical therapy for my back, this should be the last week of that actually. Mentally I'm not really sure if I can fully put into words at this time. But to sum it up, I've been feeling like a total and complete let down to my family. I feel like they drew the short straw, got the raw end of the deal, that type of thing.
yeah, I'm done for now. just wanted to post something.