Twenty-One

Well its officially my 21st birthday!

Never thought I'd make it this long. (since I wasnt supposed to live past 2)
But hey! here I am, and I'm doing great!
So thankful for everything in my life.
Would also like to take the time to remember a good friend, my first friend with Cystic Fibrosis. Kaitlyn Vece, who died 5 years ago today. on my 16th birthday.
I still think about her all the time, and I thank her for getting me involved with CF. I will love and miss her always <3 Rest In Peace Vece <3


on a not so happy note, I will be spending my 21st birthday at work, with bronchitis, and with no dog. My dog is sick, and will be going to the vet in the morning. :( feel better Skutchy. I love you.






As a premature baby, on life support.



Video for Vece

My Eulogy for Eileen

Oh Eileen,

Who would have thought that what started out as nothing but a double shift would quickly become a bond, a bond that blossomed into a friendship.

I only wish I could have met her sooner.

Unlike most of you here, I don't have a lifetime of memories to share today, as I've only known Eileen for a few months. But in that short time she managed to sneak her way right into my heart.

I cant imagine what all of you are going through right now.

But what I do know is that Eileen was a wonderful, sweet and loving person.
I know that she is now free from pain and suffering.
I know that she is watching over us, smiling down on us. Especially her great grandchildren.
I know that I will love and miss her always. And I am proud to call her my friend.
But most of all I know that she would want us to mourn quickly, and move on, to celebrate her life.

Rest In Peace Eileen.
Fly Free now Angel.

Fly Free Angel

So as many of my friends know I've been spending time with a wonderful woman name Eileen and her lovely family. I've been going to see Eileen in hospice everyday. As well as sleeping there at her bedside the past two nights. This woman is so amazing and her family is perfectly supportive. Eileen's daughter, Debbie, had made her a promise years ago that she would never go alone, so Debbie never left her side. Last night Debbie's husband convinced her to go home and get some rest, So I knew I had to say with Eileen. I push two wicker chairs together and curled up with Eileen's hand in mine. I fell asleep at around 10pm. I woke up at midnight and helped the nurse perform mouth care so that when she gave Eileen the morphine it would absorb. After that the nurse checked her blood pressure, and was unable to get one, (which had been the case for the past two days). The nurse came in to check on us again at about 1am. I sat and talked to Eileen for a few mins, then said "okay dear, lets go to sleep" (I was once again assuring her it was ok to let go) Then I fell asleep holding her hand again. at 2:20am the nurse tapped me awake and said "shes gone hunny" I squeezed Eileen's hand and gave her a kiss. I replied "I'll call debbie" to the nurse.

Once Debbie came she squeezed me for like 5mins and thanked me for being there. I stayed with them until about 5:30am when the funeral home came to pick up Eileen.

Debbie drove home with me, then we said goodnight.

Rest In Peace Eileen. May you enjoy your new journey. Fly Free Angel<3


As I was writing this Debbie called me, and asked if I would like to write a eulogy. I am thinking about it. I know I'll write something, Not sure if I'll have the guts to read it.



Last week.


Friday Night.


Last Night 9:30pm


Last Night, Midnight.


Last Night, Midnight.