Sarah needs YOUR help!

"I'm not going for easy, I'm just going for possible" 

- Janet Murnaghan. (Sarah's mother)

This beautiful, brave little girl is Sarah Murnaghan.  Diagnosed with Cystic Fibrosis at one year old, Sarah, now at only 10 years old, is dying.  She is in desperate need of a double lung transplant or she will die within weeks.  Sarah has been listed for over 18 months, as pediatric lungs are very few and far between.  The only thing standing in her way is a UNOS rule (United Network for Organ Sharing).  This rule states that while Sarah can be listed for adult lungs she may only receive them if all other adults/adolescents (over the age of 12) in the area turn them down, regardless of how sick they are.

Sarah's parents and supporters are fighting to have that rule changed.  They are not looking to take lungs from people who are sicker than Sarah, they just want to give Sarah, and other children, a fair shot at survival.  If Sarah were just 2 years older, she would, most likely, have gotten her life saving transplant by now.

Sarah's story has been taken up by many news channels, here is just one of the interviews. 
Another news story


Ways you can help: 
Sign the petition!

SHARE her story! 
Facebook, twitter, word of mouth, they all help. The more people we reach, the better the chance that we get this rule changed!

and of course,
Register to become an Organ Donor, today!


Click here to learn more about Cystic Fibrosis!

Momma Duck

just a quick recap of what has been going on with my mom. in no particular order. (and grammatically incorrect lol.)
I also have no idea why the hell it keeps posting with the white background thing. GRRR

Mom had been sick for 7 weeks with pneumonia. she ended up in the hospital.

they still don't know what she has. they do know it's NOT contagious. they sent samples of everything to a few different places (CDC..ect)

but she saw 3 different pulmos and they all had the same reaction..."wow" and my mom was like "is that a good wow or a bad wow?" obviously it was a bad wow.

her sats had been stable and then one day they randomly went to the low 80s on 2L of o2. so they did a bronch and sucked out over 3 cups of mucus. when I met with her pulmo (the one she ended up staying with) I asked about different diseases/conditions and tests and results. he actually said the words "you know too much" after he left my mom goes "okay..what did you say and what did he say?" he actually said the words "you know too much".

once she was "stable" her docs decided it was safer to send her home to be in my "fully capable hands" than to have her stay there and risk contracting another infection. if she gets sick again in the next few months it could end really bad. I had to order her a HEPA filter mask for if she leaves the house (for dr appointments and such, also for when the construction starts on my house (from hurricane sandy)) she's not allowed to go Xmas or grocery shopping, or anywhere with big crowds without her HEPA mask. and I went over the house with the pledge & antibacterial wipes. she's always had a pretty non existent immune system (respiratory wise). and no one really knows why since her blood cell count is fine. years ago her doc told her she had Chronic Bronchitis (a type of COPD) but her new pulmo said that was unlikely since she never smoked. although when he did the bronch he said it did have the appearance of COPD. (you can now see why my health is so stubborn lol)

anyway, the doc said it will be a few months before she even starts to get back to normal. =[

 so yeah, that's what's going on with momma duck.

P.S. funny story.

my mom wanted a mask attachment for her neb so she can read while she does treatments. so my dad, trying to be helpful, went to the pharmacy and got one. my mom comes into my room later and goes "dad got me a mask for the neb but I can't seem to figure out how to get it on" I go upstairs and look at it. Silly daddy got a Pari mask which doesn't fit on regular nebs. my mom turns to my dad and goes "I appreciate the effort hun, but leave the lung stuff to the kid"

I love my family 

Brilliant Bree

Bree Cordick.
One of the most amazing people I could ever hope to call my friend.







Bree suffered from Bronchiectasis. She received the gift of life, a double lung transplant on 7/8/09.
She was recently struck with a viral neurological infection. which claimed her sight then her life. a few days ago she was taken off life support. Bree we're all praying for you. If this is goodbye then have a safe journey to heaven. Love you <3

Bree you are an insiration, a hero & an angel. Most of all you're a great friend! I'll miss our "boohooyou" chats. (lol) you were always there when I needed to talk. I'll never really get used to you not being online all the time. and I cant believe this is the way you're going out. you should have years more. you should be able to accomplish everything you desired. I know you used those lungs well and made your donor proud. but I wish you had more time. Even though we never met you were one of the realest friends I had (I dont think that is a proper sentence but you'll forgive me) I love you so much Bree Cordick. you kick ass doll face!
all my love to you and your friends and family!
♥ Ducky

Hospitalization

Hey all,
as many of you know, I've been in the hospital since Tuesday.
Past few weeks I've been feeling worse and worse. finally after a bit of nagging from my friends, mom & boyfriend I decided to go to the ER. didnt plan on getting admitted. but I did. not long. 3 days. it wasnt bad (except the food was horrible).
the room was amazing. the nurses, techs & phlebotomists were good.
I did flip shit on one doctor (new guy) who was completely arrogant, and WRONG! lol.
he kept avoiding my questions and then tried to explain something about a pacemaker to me. and he was dead wrong. which made me mad. so yeah, I yelled. and stormed out of the room. I didnt see him after that lol. a different doctor came in the next day, he was great, answered all my questions. gave me the names & numbers of a bunch of new peds cardiologists. and a new pulmonologist. also gave me some new meds and put me on nebs Q4hrs for the first few days, then Q8. then once daily. then as needed.

so yeah, initially they thought it was congestive heart failure. which thankfully it was not. I do however have bronchitis, and fluid around my lungs.

which means antibiotics, nebs, & water pills! OH JOY!

anyway my BF rocks for taking me to the ER, staying with me for hours, picking me up, and babysitting my car. (on top of the fact that he just rocks in general!)