Tuesday, May 28, 2013

Sarah needs YOUR help!

"I'm not going for easy, I'm just going for possible" 
- Janet Murnaghan. (Sarah's mother)

This beautiful, brave little girl is Sarah Murnaghan.  Diagnosed with Cystic Fibrosis at one year old, Sarah, now at only 10 years old, is dying.  She is in desperate need of a double lung transplant or she will die within weeks.  Sarah has been listed for over 18 months, as pediatric lungs are very few and far between.  The only thing standing in her way is a UNOS rule (United Network for Organ Sharing).  This rule states that while Sarah can be listed for adult lungs she may only receive them if all other adults/adolescents (over the age of 12) in the area turn them down, regardless of how sick they are.

Sarah's parents and supporters are fighting to have that rule changed.  They are not looking to take lungs from people who are sicker than Sarah, they just want to give Sarah, and other children, a fair shot at survival.  If Sarah were just 2 years older, she would, most likely, have gotten her life saving transplant by now.

Sarah's story has been taken up by many news channels, here is just one of the interviews. 
Another news story

Ways you can help: 
Sign the petition!

SHARE her story! 
Facebook, twitter, word of mouth, they all help. The more people we reach, the better the chance that we get this rule changed!

and of course,
Register to become an Organ Donor, today!

Click here to learn more about Cystic Fibrosis!

1 comment:

Alex Glover said...

This is sad! If the child is eligible for a set of adult lungs due to her age, then she should be able to receive them just the same as an adult, first off. I say move this child up the list and get her a set of lungs. No child should be left to left to die when such an easy answer is staring you right in the face.

Also, who's the idiot who wrote the current law anyway. Probably someone with an adult family member needing lungs and they wrote the law to help their own family or friend or financial donor.

Change the law, but first break it and get this child a set of lungs.